Everyday Superheroes


Welcome to the March 2014 Carnival of Natural Parenting: Everyday Superheroes
This post was written for inclusion in the monthly Carnival of Natural Parenting hosted by Hobo Mama and Code Name: Mama. This month our participants have talked about the remarkable people and characteristics that have touched their lives. Please read to the end to find a list of links to the other carnival participants.
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"It is surmounting difficulties that makes heroes." -Lajos Kossoth


Superhero Austin


This has been a tough month for the Walker Warburg Syndrome (WWS)  Facebook Family. Because WWS is extremely rare, most of us never meet anyone else in person that has the disorder. Thankfully due to the internet we can now connect with other families dealing with WWS. Many of the babies struggled in and out of the hospital with infections and breathing issues through the winter.Sadly, two of our sweet WWS boys passed away during the month of February. These babies are my superheroes.

My daughter Bella suffered from Walker Warburg Syndrome. I wrote more about that, here, here and here. To briefly summarize the rare genetic disorder is characterized by Muscular Dystrophy, blindness (microphthalmia), Hydrocephalus and Lissencephaly. Most parents are given the diagnosis at the 20 week ultrasound. We are usually offered an abortion, which clearly the parents in this facebook group have declined. We've chosen a different path.

We've chosen to live with the uncertainty, the heart break, the struggle. Please don't forget that we've also chosen love, life and joy. Yes, joy wiggles it's way in there when you chose love and life. These sweet babies have only entered our life for a short time, but they left an impression that will last. They may be small but they teach mighty lessons. Mostly I feel they taught us all a lesson in unconditional love. Their lives were important and they mattered.

"The hero is commonly the simplest and obscurest of men."-Thoreau
Superhero or Rock Star?? -My Sweet Bella 

Superheroes exhibit extraordinary strength and power. Here are a few superheroes that have touched my life:

My Bella. I witnessed her strength up close and personal. She was strong beyond words, as I believe all of these Walker Warburg babies are. I know her life wasn't comfortable. I know she suffered through seizures and surgeries. But most of all, I know she was loved.

Baby Austin- I haven't met Baby Austin in person, I've met him through the WWS facebook group. It's his family that gave me the inspiration for this post. They often dressed him in Superman clothes and refer to him as their little superhero, and that he was. He fought for 9 months and passed away in his Momma's armsFebruary 16, 2014. You can see his facebook page, and learn more of his story here.

Baby Evan- Another sweet baby I've only been able to know via the internet. His chubby cheeks and happy disposition reminded me of my sweet girl. This superhero passed away on February 22, 2014. You can learn more about Evan HERE and support his family HERE.
Baby Evan 

Every superhero has a sidekick, these superheroes are no exception. The families that supported these sweet superheroes can not be forgotten. They are left behind to carry the torch with a broken hearts and empty cradles. They leave behind big brothers and sister. But most of all they leave behind memories that will be cherished forever.

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Carnival of Natural Parenting -- Hobo Mama and Code Name: MamaVisit Hobo Mama and Code Name: Mama to find out how you can participate in the next Carnival of Natural Parenting!

Please take time to read the submissions by the other carnival participants:

(This list will be updated by afternoon March 11 with all the carnival links.)

  • I Am A Super Hero — Jennifer at Hybrid Rasta Mama shares how she learned the hard way exactly what it means to be a real super hero and not a burned out shell of a human simply pretending to be one.
  • Quiet Heroics — Heroism doesn't have to be big and bold. Read how Jorje of Momma Jorje is a quiet hero…and how you probably are, too.
  • Not a Bang, but a Whisper {Carnival of Natural Parenting} — Meegs at A New Day talks about the different types of "superheroes," ones that come in with a bang and ones that come in with a whisper.
  • Silent courage of motherhood in rural Cambodia — Nathalie at Kampuchea Crossings marvels at how rural Khmer women defy the odds in childbirth.
  • Super PappyMother Goutte's little boy met a superhero in checked slippers and Volkswagen Polo, his grand dad: Super Pappy!
  • An Open Letter to Batman — Kati at The Best Things challenges Batman to hold up his end of the deal, in the name of social justice, civic duty, and a little boy named Babe-O!
  • My Village — Kellie at Our Mindful Life reflects on the people who helped her to become her best self.
  • 5 Lessons My Kids Taught Me — Children are amazing teachers, when we only stop to listen. They remind us to choose happiness, to delight in the small things, to let go and forgive. There is so much we can learn from our children. Justine at The Lone Home Ranger shares a few of the lessons she's learned.
  • Could you use some superpowers? — Tat at Mum in search shares a fun activity to help you connect with your own superpowers.
  • Like Fire Engines — Tam at tinsenpup tells the story of the day she saw a surprising superhero lurking in the guise of her not entirely mild-mannered four-year-old daughter.
  • Everyday Superheroes — Erica at ChildOrganics shares her list of Walker Warburg Syndrome Superheroes that have touched her life forever.
  • My Superhero of the Week: Nancy GallagherTribal Mama muses about the transcendent things her superhero mom has done.
  • My choice in natural birth does not make me a super hero — Bianca, The Pierogie Mama, discusses her thoughts on her experience with the perception of natural birth and putting those mamas on a different level. Does giving birth naturally give cause for an extra pat on the back? No! All mamas, no matter how they birth, are superheroes.
  • Someone's Hero — Sometimes being a parent means pretending to be a grown-up, but it always means you are someone's hero. Read Mandy's lament at Living Peacefully with Children.
  • Growing into a Super Hero — Casey at Joyful Courage shares how owning our behavior and choosing to be a better parent, a better person, is an act of courage.
  • A Math Superhero — Kerry at City Kids Homeschooling writes that her 7-year-old daughter's superhero is an MIT-trained mathematician.
  • It Starts With Truffula Trees And Tulips — Luschka of Diary of a First Child takes a hard look at the realities of her relationship with her mother, and through this post goes on a journey of discovery that ends in a surprise realisation for her.
  • We Don't Need an Excuse — Maria Kang (aka "Hot Mom") asks women #WhatsYourExcuse for not being in shape? Dionna at Code Name: Mama asks Hot Mom what her excuse is for not devoting her life to charity work, or fostering dozens of stray dogs each year, or advocating for the needs of others. Better yet, Code Name: Mama says, how about we realize that every woman has her own priorities. Focus on your own, and stop judging others for theirs.
  • It's not heroic when you're living it — Lauren at Hobo Mama knows from the inside that homeschooling does not take a hero, and that much of what we choose as parents is simply what works best for us.
  • Superheroes, princesses and preschoolers — Garry at Postilius discusses why his preschool-age son is not ready for comic book superheroes.
  • The Loving Parents of Children with Special Needs – Everyday Superheroes — Deb Chitwood at Living Montessori Now shares posts with resources for parents of children with special needs along with posts to help others know how to support parents of children with special needs.
  • Everyday Empathy — Mommy Giraffe of Little Green Giraffe shares why her secret superpower is everyday empathy.
  • The Simplicity of Being a Superhero — Ana at Panda & Ananaso explains what superheroes mean to her wise three-year-old.
  • My Father, The Hero — Fathers are pretty amazing; find out why Christine at The Erudite Mom thinks hers is the bees knees.

7 comments

Such a moving post. As you say you chose love, life and joy , all things that, through posts like this one, you can share with others. Thank you... xxx (sending a big, virtual hug too!)

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Those sweet babies and families — I'm so sad for the losses. Thanks for passing on their stories and the call for support.

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This is a beautiful post. Touching photos and narrative. Thanks for writing about this.

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So beautiful. Here's to choosing "love, life and joy". That photo of your dear little girl is just precious. They are all precious little superheroes. Thank you for sharing them and their far too short lives.

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May we all choose "love, life, and joy" and find the beauty in the world around us.

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Thank you for showing how you choose life love and joy every day. Beautiful post!

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All of these families are full of heroes. Thank you for sharing.

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